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November is Palliative Care Awareness Month
Few things in life are as challenging as knowing when it is time to consider palliative care for a loved one -- and fully understanding the nuances of palliative care options and approaches available to you. Your FCMG care provider can help you with these decisions and help you develop a path forward for your unique needs. (You can learn more about our palliative care services here -- after which we encourage you to speak to your FCMG provider.)
Meantime, here are some high-level descriptions about the kinds of palliative care types:
- Inpatient Palliative Care: This is provided in a hospital or specialized palliative care facility and is designed for patients who require close medical supervision, symptom management, and complex care that can't be managed at home. Inpatient palliative care often offers a multidisciplinary approach with a team of specialists working together.
- Outpatient Palliative Care: This type of care is provided in a clinic or healthcare facility on an outpatient basis, wherein patients visit these facilities for consultations, treatments, and support. This approach may be suitable for those who don't require round-the-clock care, but could benefit from ongoing symptom management, counseling, and support.
- Home-Based Palliative Care: This type of care is provided at the patient's home, allowing patients to receive care in the comfort of their familiar environment. Home-based palliative care may involve nurses, doctors, social workers, and other specialists who visit the patient's home to provide necessary care and support.
- Community-Based Palliative Care: This care model extends beyond the traditional healthcare settings and typically involves integrating palliative care services into community programs, such as senior centers, assisted living facilities, or community clinics. Here, the aim is to provide support to individuals facing serious illness or approaching the end of life within their community.
- Pediatric Palliative Care: Tailored specifically for children with life-limiting or life-threatening conditions, this type of care focuses on the unique needs of children and their families -- providing support for managing symptoms, addressing emotional needs, and coordinating care for seriously ill children.
- Specialty-Based Palliative Care: This includes palliative care tailored for specific illnesses or conditions, such as cancer palliative care, cardiac palliative care, or dementia palliative care. Specialists in these areas provide focused support that addresses the particular needs and challenges associated with these conditions.
The best type of care for you depends on your health status, personal preferences, and level of care required -- and all options available to you should be discussed with your primary care provider.
Here are some ways to tell you if it might be time to discuss palliative care with your doctor:
- Frequent Hospitalizations: If your loved one is experiencing recurrent hospital admissions due to a chronic illness, this could be a sign that their condition is worsening and requires more comprehensive care. Palliative care can offer support to manage symptoms and improve their quality of life.
- Uncontrolled Symptoms: When symptoms like pain, breathlessness, nausea, fatigue, or other physical discomfort become difficult to manage, despite various treatments and medications, it might be time to consider palliative care. Palliative care specialists can help control these symptoms more effectively.
- Declining Functional Abilities: If your loved one's condition leads to a significant decline in their ability to perform daily activities, impacting their independence and quality of life, palliative care can provide support to manage these changes and help them adapt.
- Complex Medical Needs: When your loved one has multiple complex medical conditions, managing their care might become overwhelming. Palliative care offers a holistic approach, coordinating various treatments and medical services to ensure comprehensive support.
- Emotional and Psychological Distress: Chronic illness or advanced disease can take a toll on mental health. Emotional distress, anxiety, or depression are common in these situations. Palliative care not only addresses physical symptoms but also provides emotional and psychological support for both the patient and their family.
It's important to note that these signs might vary based on individual circumstances. The decision to pursue palliative care is highly personal and should involve discussions with the individual, their family, and their healthcare providers to ensure that the care plan aligns with the patient's wishes and needs.
And here are sources of still more information, to aid in your research and help inform your discussion with a doctor:
- National Hospice & Palliative Care Organization
- Caring Info (a program of the NHPCO)
- National Institute on Aging
- Centers for Disease Control and Prevention (CDC)